Last month I traveled to Philadelphia for the first ever CDH Summit. It was an honor to be invited to such an event and it proved to be more than I could have ever expected. For those who don't know CDH stands for congenital diaphragmatic hernia. It's a rare and often fatal birth defect with no known cause and it took the life of our only child, Parker Reese in May 2006.
I had never been to Philly before so I was super excited to what all it had to offer. It's a beautiful place. So much history. Many gorgeous photo opportunities.
The summit was amazing. I learned so much about what's being done to find a cause for CDH. The speakers were all so kind and it was so nice to put a face to a name. They had two CDH research centers there and it was exciting to see the families participate in their studies. I love meeting CDH families. I never imagined that my life would become what it is today. Running a CDH nonprofit and dedicating my life to families diagnosed with CDH. I love what I do. And I've met some of my best friends from our journey with CDH. We truly are blessed that God chose us. It's taken us some time to discover that but I have come to accept that I may never fully understand the path God has chosen for my life, but find great peace in simply knowing there is one.
I am looking forward to dinner with our friends tonight and a weekend without any children. We are keeping two of our nieces and a nephew during the week. We love them to pieces but it's nice to have a break!